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Written on Thursday, 22. January 2015, 21:59 by Brian Majesky

Hello,


My name is Brian Majesky, I am 35 years old from Corning, New York. As months go on in the last year, I have been thinking about how provide awareness out for Epilepsy. I am just one person not affiliated with any organizations. I see they have different awareness out there what is great, like for Breast Cancer awareness month, Suicide awareness, Autism awareness, National Cancer Survivor Month and the newest the ice bucket challenge for ALS. I see that on the television, hear on the radio, even see it on the computer, But you rarely is ever see anything about Epilepsy awareness. I want to see this happen, because I know first hand what it is like, since I was diagnosed with Epilepsy when I was 12. I want to show others and inform people about it. Showing them that people with Epilepsy and that have seizures are just like everyone else.


I talked to the General Manager Matt Hufnagel of the First Arena/Elmira Jackals a “minor league hockey team”. He said he would be happy to help. I just need to find speakers that know first hand about Epilepsy/Seizures, to raise money for the not just for the Epilepsy Foundation, but to go to raise money and give it to help out families with outstanding medical bills or need help with children in the hospital at the moment, more of a grant I guess you could say. I contacted the Epilepsy Foundation“that not a lot of people don’t even know about.” but since they are so low staffed they can’t help.


I don’t want to be copy cat but maybe figure something else like the ice bucket challenge, that has rased over 2 million dollars for ALS Lou Gehrig's disease. Mr. Hufnagel said he would be on board and help 100% . I wanted to see if Elmira Jackals/First Arena, and myself would be able to have your support, and by any chance if you could help. If other people see someone with epilepsy/seizures. Maybe you could talk and show how can over come. everything and got to where you are today. If other people see this, that epilepsy can effect anyone, but you still can over come the odds and be successful.


The big reason to push others to buy bracelets or shirts, ribbons etc. Putting all the money towards awareness and research and help individuals with epilepsy by showing them off, they can make a donation and that would be helping somebody or family with outstanding medical bills The First Arena works with several non profit organizations to try and raise awareness and funds. Since the Epilepsy Foundation at the moment they only could send information pamphlets. This is one reason I am asking you to see if you would be able to help me in any way. I am not someone with a lot of money but a nice big fund-raiser would be great. It would be grate to have this fund raiser start that get a website started so they could donate that way also. If anyway you could help me. I would be so grateful, for others that would need this money.


When The First Arena works with the organizational leadership, they ask that they get behind our promotion very heavily as well. This way they see a much greater benefit and return. If you are able to work with the, The First Arena and myself, Mr. Hufnagel the GM wants to do this BIG. The bigger and better brings more money for research or help others that have outrages medical bills, I know for a fact spending time in the hospital for Epilepsy is very expensive. I have to pay bills out my ear. But I want to help others now. Mr. Hufnagel would like to get a meeting for all of us some how. I understand you are not from around the Elmira Corning New York area, but even if it is a video or phone call meeting with you. If you are willing to get behind us maybe some how a meeting then can form, then we would love to create a plan together with their goals in mind. Can you help me in anyway. I will be able to get different news groups around the twin tiers area that is affiliated with the First Arena/Elmira Jackals. To inform people don’t be afraid of Epilepsy or people with seizures.


This will show that you can still able to be successful, even if you Epilepsy/seizures . It would will show the foundation that I am here for real and raise money for them. It would go the fundraiser at the moment since I do not have a foundation of my own. It would be great to have one just don’t have the money to start one. I want to do this, but it would take a little bit of time to get things in place. The BIGGER THE BETTER , and If the you could get behind me in any way it would be great. I just need some big names to talk about how they got to where you are even though you have seizures you can be successful. I would be SO GRATEFUL if you could help me out getting this up and going. Please if you would be able to help me it would could. Please get back to me ASAP. Thank you for your time. Hope to hear from you soon.

Sincerely,

Brian Majesty



Brian Majesty

6 Pine Tree Village Apt 201

Painted Post,NY,14870


brianmajesky@gmail.com

607-346-6152

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Written on Thursday, 01. January 2015, 14:01 by EdwardBork

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Written on Thursday, 01. January 2015, 00:51 by Michael Monz

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Written on Wednesday, 31. December 2014, 15:58 by EdwardBork

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